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Huntington's Disease Caregiving

What Is A Caregiver?
What Is An HD Caregiver?
Caregiving For A Spouse
Caregivers Bill of Rights
Helping Your Loved One
Your pHD Is Unique!
About Huntington's Disease
HD Articles of Interest
HD Guidebooks
Post Emergency Info
Early/ Early Intermediate Stages
Late Intermediate Stage
Swallowing Diagnostic
Speech & Language in HD
Swallowing Safety in HD
Early Advanced Stage
Swallowing Difficulties~Physician's Guide
Warning Signs of Swallowing Problems
Swallowing, Coughing, Choking & Pneumonia
Swallowing~Giving Medication
A Practical Guide: Nutrition and HD & Resources
Diet & Nutrition in HD
Nutrition and Huntington's Disease
Nutrition Information for the Care Giver
Texture & Consistency/Thining & Thickening Foods
Drinks/Shakes Recipes
Adaptive Equipment-Mealtime Help
Food Thickners
What Is A Feeding Tube?
When To Consider A Feeding Tube
Feeding Tube Decision in HD
Feeding Tube Resources
Advanced Stage
Late Stage Care
Commom Problems Encountered~Hospice Care
Temporary List of Resources
Personality Issues
Legal Issues
Disability Issues
At Home Care
Outside Care
Caregiver Tips
Caregiver Support
HD Facts
Helpful Forms-Download
Personal Articles/Stories
Miller Messages
HD Links
Fix It-R-Us?
How-To Tips
Have An HD Question?
Beautiful Memories
Caregiver's Chat Room
HD Caregiver Newsletter
Daily Humor & Health News
Dreams & Signs (Fun Stuff)
Share A Link
Send An HD Greeting Card
Location Map
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For starters........more to come!
Balancing Work and Caregiving-What You Should Know
Coping with Double Demands. Your loved one  needs full-time care, but you can't afford to quit your job or take time off. What You Should Know
Caregiving decisions can be hard to make. They are often complicated, involving many different, sometimes conflicting, factors. Consequences can affect other peoples lives and health....usually people who are very important to you. They often involve unfamiliar, unexpected circumstances. And they almost always come with time pressures, emotional pressures, and stress.
How does it work?Answer a few simple questions to create and maintain an Action Plan that will help you provide better care for a loved one. What does it do? The CarePlanner generates specific information based on your situation so you dont have to waste time sifting through irrelevent content. Point your mouse on the buttons to the right to find out more about the CarePlanners features.
Information and tools that can make caregiving easier. Enter this site by entering the ZIP code of the area that most interests you and clicking GO. This will localize resource listings to that community.
Those who provide care for ill family members or friends are vital members of the health care team. Most of them have no formal training and rely to a great degree on what they learn from the attending physician and other healthcare professionals. Since so much care is provided in the home and few physicians make home visits, the following principles should serve as a guide to some of the things caregivers need from doctors.
From Handbook For Mortals:   Coping with a serious illness, our own or a loved one's, causes a lot of anxiety and confusion. This can be made worse by our health care system - which is really not a system, but a mix of disconnected, and sometimes dysfunctional, groups, plans, services, and professionals. If what you need is a little help for a short amount of time, you might find that no program or service is available. How to find help and advice; What to do when things don't go well;  A guide to settings and services; How do I pay for these services?